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Tuesday 3 March 2009 from 09:00 till 18:00 hrs
SESSION
1: OPENING SESSION
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State
of the Industry by Mr. Larry Guiheen, PPTA Global Chairman
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Role
of the reference centers in the treatment of PID by Prof. Alain
Fischer , AP-HP Necker Hospital, Paris
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Canadian
thoughts on self-sufficiency by Dr. Graham Sher, Canadian Blood
Service
SESSION
2: REGULATORY AFFAIRS - WHAT'S UP IN EUROPE?
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The
EMEA Blood Products Working Party: current priorities by Prof.
Rainer Seitz, Paul-Ehrlich-Institut
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Revision
4 of the guideline on plasma-derived medicinal products by Dr.
Johannes Dodt, EMEA
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New
Variations Regulations by Dr. Martin Terberger, European Commission
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Counterfeit
medicines - Think locally, act globally by Ms. Bridget Elis, PPTA
SESSION
3: RARE DISEASES - A EUROPEAN HEALTH PRIORITY?
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European
Commission actions in the field of rare diseases by Mr. Thomas
Bregeon, European Commission
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The
Rare Diseases Community Priorities by Mr. François Houyez, Eurordis
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Rare
Diseases: The European Parliament's viewpoint, European Parliament
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Plasma
related patient organizations by Mr. David Watters, IPOPI
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Overview
of Member States Public Health Policies for Rare Diseases by Dr.
Ségolène Aymé, Orphanet EC TF on Rare Diseases
SESSION
4: DEVELOPMENTS IN THE CLINICAL USE OF PLASMA PROTEINS
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New
perspectives on the therapeutic use of albumin by Prof. Timothy
Evans, The Royal Brompton Hospital, London
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Underdiagnosis:
the real cost of PID by Mrs. Marcia Boyle, Immune Deficiency
Foundation, USA
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The
role of EAHAD by Prof. Christopher Ludlam, The European Association
for Haemophilia and Allied Disorders
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Neurological
use of Ig review by Prof. Jean-Marc Léger, La Pitié Salpétrière
Hospital, Paris
Wednesday 4 March 2009 from 08:00 till 16:00 hrs
SESSION
5: MEETING CLINICAL NEEDS - VARIOUS PERSPECTIVES ON HOW MUCH PLASMA
WE NEED
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Patient
perspective by Mr. Brian O’Mahony, Irish Haemophilia Society
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Immunoglobulin:
the “driving” product for plasma demand by Dr. Teresa Espanol,
Vall d’Hebron Hospital, Barcelona
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Ethicist’s
perspective by Dr. Jürgen Wallner, University of Vienna
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Plasma
demand in 2015 by Dr. Patrick Robert, Marketing Research Bureau
SESSION
6: GETTING THE PLASMA WE NEED
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Regulatory
environment of plasma collection in Germany by Prof. Peter
Hellstern, University Hospital Ludwigshafen
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Demographic
developments by Dr. Sabine Ritter, Robert-Koch-Institut
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Sparing
the donor’s red cells during frequent plasmapheresis by Dr.
Kirsten Seidel, ZLB Plasma
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Opening
new plasma centers by Mr. Jürgen Wohlfahrt-Laymann, Plasma Service
Europe GmbH
SESSION
7: OPTIMIZING ACCESS TO PLASMA PROTEIN THERAPIES
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Challenges
facing Alpha One Trypsin patients by Mr. Larry Warren, Alpha One
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Optimizing
access to coagulation factors: patient perspective by Mr. Mark
Skinner, World Federation of Hemophilia
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Optimizing
access to PID treatment: patient perspective by Mrs. Jose Drabwell,
IPOPI
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The
implication of a level playing field by Mr. Jan Bult, PPTA
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